Youth perspective on pulmonary tuberculosis parent’s Care

Kristina Lisum, Agung Waluyo, Astuti Yuni Nursasi, Jesika Pasaribu

Abstract


People still underestimate the dangers and threats of pulmonary TB, although its incidence and mortality rate is high in Indonesia. When parents have pulmonary TB, youth can provide attentiveness to parent’s physical need and TB treatment. The purpose of this study was to determine the response of youth whose parents suffer from pulmonary TB.  This research used qualitative method with descriptive design. Semi-structured interviews were conducted online and/or face-to-face in November 2020 to June 2021.  There were 17 participants contributed to this study consisting of seven youth and seven parents or older siblings with pulmonary TB at Bogor regency. The data obtained were further analyzed using thematic analysis. Four thematics were produced from this research. These themes include knowledge of youth and parents with pulmonary TB: the transmission, administration duration, and side effects of TB medication; negative responses of youth to parents with pulmonary TB; youth poor skills in taking care for families; and cooperation between family, and health care workers in supporting the healing of pulmonary TB. Future research could develop and strengthen youth capacity to increase their skills providing care to parents with pulmonary TB.


References


U. D. CDC, “History of World TB Day,” 2021. https://www.cdc.gov/tb/worldtbday/default.htm (accessed Aug. 04, 2021).

K. Zaman, “Tuberculosis: A global health problem,” J. Heal. Popul. Nutr., vol. 28, no. 2, pp. 111–113, 2010, doi: 10.3329/jhpn.v28i2.4879.

WHO, Global Tuberculosis Report. 2020.

Ministry of Health Republic of Indonesia," Similar Ways treat TBC and COVID 19,” 2021. https://www.kemkes.go.id/article/view/21032400001/cara-sama-tanggulangi-tbc-dan-covid-19.html.

T. Xia, J. Chen, J. Rui, J. Li, and Y. Guo, “What affected Chinese parents’ decisions about tuberculosis (TB) treatment: Implications based on a cross-sectional survey,” PLoS One, vol. 16, no. 1 January, pp. 1–11, 2021, doi: 10.1371/journal.pone.0245691.

D. Chandraratne, N., Yamaguchi, M., Indrawansa, S., Gunawardena, N., Kuwahara, K., Islam, Z., Kawasaki, Y., Mizoue, T., Samarasinghe, “The effect of youths as change agents on cardiovaskular diseases risk factors among adult neighbours : a cluster randomised controlled trial in Srilanka,” BMC Public Health, vol. 19, no. 893, pp. 1–11, 2019, doi: DOI: 10.1186/s12889-019-7142-1.

B. Fornari, L.S., Giuliano, I., Azvedo, F., Pastana, A., Vieira, C., Caramelli, “Children First Study : how an educational program in cardiovascular prevention at school can improve parents’ cardiovascular risk,” Eur. J. Prev. Cardiol., vol. 20, no. 2, pp. 301–309, 2012, doi: DOI: 10.1177/2047487312437617.

S. Chikhradze, N., Knecht, C. & Metzing, “Young carers: growing up with chronic illness in the family - a systematic review 2007-2017,” J Compassionate Heal. Care, vol. 4, no. 12, 2017, doi: https://doi.org/10.1186/s40639-017-0041-3.

S. Notoatmodjo, Health Behavior. Jakarta: Rineka Cipta, 2014.

F. H. Gebreweld et al., “Factors influencing adherence to tuberculosis treatment in Asmara, Eritrea: A qualitative study,” J. Heal. Popul. Nutr., vol. 37, no. 1, pp. 1–9, 2018, doi: 10.1186/s41043-017-0132-y.

I. S. Pradipta et al., “Barriers and strategies to successful tuberculosis treatment in a high-burden tuberculosis setting: a qualitative study from the patient’s perspective,” BMC Public Health, vol. 21, no. 1, pp. 1–12, 2021, doi: 10.1186/s12889-021-12005-y.

W. Sari, E., Lisum, K., & Susilo, “ The influence of health education based on Youtube to high school student's knowledge about tuberculosis prevention,” J. Keperawatan, vol. 13, no. 2, pp. 395–401, 2021.

B. J. Sullivan, B. E. Esmaili, and C. K. Cunningham, “Barriers to initiating tuberculosis treatment in sub-Saharan Africa: A systematic review focused on children and youth,” Glob. Health Action, vol. 10, no. 1, 2017, doi: 10.1080/16549716.2017.1290317.

A. A. Aseeri, R. A. Turkestani, and M. A. Alamri, “Assessment of Knowledge, Attitudes and Practices regarding Pulmonary Tuberculosis among Saudi Arabia Community in 2017,” Egypt. J. Hosp. Med., vol. 69, no. 5, pp. 2421–2425, 2017, doi: 10.12816/0041687.

S. Sulaeman, Community empowerment in health area. Jogjakarta: Gadjah Mada University Press, 2016.

B. W. Solantaus-Simula T, Punamäki RL, “Children’s responses to low parental mood. II: Associations with family perceptions of parenting styles and child distress,” Am Acad Child Adolesc Psychiatry., vol. 41, no. 3, pp. 287–95, 2002, doi: 10.1097/00004583-200203000-00008. PMID: 11886023.

T. Mauseth and E. Hjälmhult, “Adolescents’ experiences on coping with parental multiple sclerosis: A grounded theory study,” J. Clin. Nurs., vol. 25, no. 5–6, pp. 856–865, 2016, doi: 10.1111/jocn.13131.

C. D. Houck, J. R. Rodrigue, and D. Lobato, “Parent-adolescent communication and psychological symptoms among adolescents with chronically ill parents,” J. Pediatr. Psychol., vol. 32, no. 5, pp. 596–604, 2007, doi: 10.1093/jpepsy/jsl048.

M. Thastum, M. B. Johansen, L. Gubba, L. B. Olesen, and G. Romer, “Coping, social relations, and communication: A qualitative exploratory study of children of parents with cancer,” Clin. Child Psychol. Psychiatry, vol. 13, no. 1, pp. 123–138, 2008, doi: 10.1177/1359104507086345.

F. Phillips, “Adolescents living with a parent with advanced cancer: A review of the literature,” Psychooncology., vol. 23, no. 12, pp. 1323–1339, 2014, doi: 10.1002/pon.3570.

J. Hunleth, Children As Caregivers : The Global Fight Against Tuberculosis and HIV in Zambia. New Brunswick: Rutgers University Press, 2017.

E. K. Kallander et al., “Children with ill parents: extent and nature of caring activities,” Scand. J. Caring Sci., vol. 32, no. 2, pp. 793–804, 2018, doi: 10.1111/scs.12510.

L. R. Louise Dalton, Elizabeth Rapa, Sue Ziebland, Tamsen Rochat, Brenda Kelly, Lucy Hanington, Ruth Bland, Aisha Yousafzai, Alan Stein, Theresa Betancourt, Myra Bluebond-Langner, Catherine D’Souza, Mina Fazel, Kim Fredman-Stein, Emily Harrop, Daniel Hochhauser, “Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent,” Lancet, vol. 393, no. 10176, pp. 1164–1176, 2019, doi: 10.1016/S0140-6736(18)33202-1.

Y. S. Gunarsa, S.D., Gunarsa, Practice Psyhchology : Children, Adolescent and Family. Jakarta: BPK Gunung Mulia, 2001.

Mappiare, Adolescent's Pschology. Surabaya: Bina Usaha, 2000.

K. W. R. Putra and C. Toonsiri, “Factors Related To the Successful Treatment of Tuberculosis: a Literature Review,” Belitung Nurs. J., vol. 5, no. 4, pp. 136–146, 2019, doi: 10.33546/bnj.749.

S. E. Saqib, M. M. Ahmad, and S. Panezai, “Care and social support from family and community in patients with pulmonary tuberculosis in Pakistan,” Fam. Med. Community Heal., vol. 7, no. 4, pp. 1–10, 2019, doi: 10.1136/fmch-2019-000121.

A. L. Barik, R. Indarwati, and S. Sulistiawati, “The Role of Social Support on Treatment Adherence in Tb Patients: a Systematic Review,” Nurse Heal. J. Keperawatan, vol. 9, no. 2, pp. 201–210, 2020, doi: 10.36720/nhjk.v9i2.186.

H. Larcher, V., Dittborn, M., Linthicum, J., Sutton, A., Brierley, J., Payne, C., Hardy, “Young people’s views on their role in the Covid-19 pandemic and society’s recovery from it,” Arch Dis Child, pp. 1–5, 2020, doi: doi:10.1136/archdischild-2020-320040.

J. Chi, Peilian; Li, Xiaoming; Tam, Cheuk Chi; Du, Hongfei; Guoxiang, Zhao; Zhao, “Parenting Mediates the Impact of Caregivers’ Distress on Children’s Well-Being in Families Affected by HIV/AIDS,” AIDS Behav, vol. 19, no. 11, pp. 2130–2139, 2015, doi: 10.1007/s10461-015-1104-0.Parenting.

Horner R, “Interventions for children coping with parental multiple sclerosis: a systematic review,” J Am Assoc Nurse Pr., vol. 25, no. 6, pp. 309–13, 2013, doi: 10.1111/j.1745-7599.2012.00795.x PMID: 24170595.




DOI: http://doi.org/10.11591/ijphs.v11i3.21398

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